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Presenting evidence-based recommendations to patients and the public - what do people want and how should we provide it?

Date and Location




Sunday 22 September 2013 - 15:30 - 17:00


Contact persons and facilitators

Contact person

Robin Harbour


Nancy Santesso
Thomas Agoritsas
Target audience

Target audience

Anyone with an interest in communicating evidence to patients and the public

Is your workshop restricted to a specific audience or open to all Colloquium participants?


Level of knowledge required

Type of workshop

Type of workshop

Abstract text


Objectives: 1) To summarise what DECIDE has learnt from a literature review, surveys (involving ~1900 participants), focus groups (~50) and user-testing (~20) involving a diverse range of people; 2) To contribute to the evaluation of alternative presentations of evidence-based recommendations intended for use in both self-management and shared decision-making situations. Description: DECIDE ( is a 5-year project that aims to develop and evaluate methods that improve the dissemination of evidence-based guideline recommendations to a range of stakeholders, including patients and the public. The workshop will open with a brief introduction to DECIDE, followed by a summary of our findings from the review, survey, focus groups and user-testing with patients and the public. For example, patients’ and the public have issues with the whole concept of ‘evidence’ and associated issues around trust. One of the key things to address in this context is the idea of confidence – how sure we are in the conclusions derived from the evidence. The bulk of the workshop will be an interactive session where participants are invited to test and give feedback on DECIDE materials developed from real guidelines and intended public use. Part of the workshop will be a randomised evaluation of alternative DECIDE presentations, which we aim to complete, analyse and present before the end of the workshop. Workshop participants will therefore not only hear about our work but contribute directly to our ongoing research.